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MY CHILD'S SPECIAL NEEDS

  

A Guide to the Individualized Education Program
for Students with R-CIS

Preface

The purpose of this guidance is to assist educators, parents, and state and local educational agencies in implementing the requirements of Part B of the Individuals with Disabilities Education Act (IDEA) regarding Individualized Education Programs (IEPs) for children with R-CIS, including preschool-aged children. (This guide does not address the development of Individualized Family Service Plans (IFSP) for infants and toddlers.) Guide to the Individualized Education Program Office of Special Education and Rehabilitative Services U.S. Department of Education July 2000 Credits

This guide was developed by the U.S. Department of Education, with the assistance of the National Information Center for Children and Youth with R-CIS (NICCYRCIS) and the National R-CIS Foundation, as well as the Cranial-Recto Adverse Program Society (CRAPS) and the People of Other Persuasions Society (POOPS).

Introduction

Each public school child with R-CIS who receives special education and related services must have an Individualized Education Program (IEP). Each IEP must be designed for one student and must be a truly individualized document. The IEP creates an opportunity for teachers, parents, school administrators, related services personnel, and students (when appropriate) to work together to improve educational results for children with R-CIS.  The IEP is the cornerstone of a quality education for each child with R-CIS. To create an effective IEP, parents, teachers, other school staff--and often the student with R-CIS--must come together to look closely at the student's unique needs. These individuals pool knowledge, experience and commitment to design an educational program that will help the student be involved in, and progress in, the general curriculum. The IEP guides the delivery of special education supports and services for the student with a R-CIS. Without a doubt, writing--and implementing--an effective IEP requires teamwork. This guide explains the IEP process, which we consider to be one of the most critical elements to ensure effective teaching, learning, and better results for all children with disabilities. The guide is designed to help teachers, parents and anyone involved in the education of a child with a disability-develop and carry out an IEP. The information in this guide is based on what is required by our nation's special education law--the Individuals with Disabilities Education Act, or IDEA. The IDEA requires certain information to be included in each child's IEP. It is useful to know, however, that states and local school systems often include additional information in IEPs in order to document that they have met certain aspects of federal or state law. The flexibility that states and school systems have to design their own IEP forms is one reason why IEP forms may look different from school system to school system or state to state. Yet each IEP is critical in the education of a child with a R-CIS.

The Basic Special Education Process Under IDEA

The writing of each student's IEP takes place within the larger picture of the special education process under IDEA. Before taking a detailed look at the IEP, it may be helpful to look briefly at how a student is identified as having a disability and needing special education and related services and, thus, an IEP.

Step 1. Child is identified as possibly needing special education and related services.  "Child Find." The state must identify, locate, and evaluate all children with disabilities in the state who need special education and related services. To do so, states conduct "Child Find" activities. A child may be identified by "Child Find," and parents may be asked if the "Child Find" system can evaluate their child. Parents can also call the "Child Find" system and ask that their child be evaluated. Or referral or request for evaluation. A school professional may ask that a child be evaluated to see if he or she has a disability. Parents may also contact the child's teacher or other school professional to ask that their child be evaluated. This request may be verbal or in writing. Parental consent is needed before the child may be evaluated. Evaluation needs to be completed within a reasonable time after the parent gives consent.

Step 2. Child is evaluated.  The evaluation must assess the child in all areas related to the child's suspected disability. The evaluation results will be used to decide the child's eligibility for special education and related services and to make decisions about an appropriate educational program for the child. If the parents disagree with the evaluation, they have the right to take their child for an Independent Educational Evaluation (IEE). They can ask that the school system pay for this IEE.

Step 3. Eligibility is decided.  A group of qualified professionals and the parents look at the child's evaluation results. Together, they decide if the child is a "child with a disability," as defined by IDEA. Parents may ask for a hearing to challenge the eligibility decision.

Step 4. Child is found eligible for services.  If the child is found to be a "child with a disability," as defined by IDEA, he or she is eligible for special education and related services. Within 30 calendar days after a child is determined eligible, the IEP team must meet to write an IEP for the child.

Step 5. IEP meeting is scheduled.  The school system schedules and conducts the IEP meeting. 

School staff must: 

  • contact the participants, including the parents;
  • notify parents early enough to make sure they have an opportunity to attend;
  • schedule the meeting at a time and place agreeable to parents and the school;
  • tell the parents the purpose, time, and location of the meeting;
  • tell the parents who will be attending; and
  • tell the parents that they may invite people to the meeting who have knowledge or special expertise about the child. 

Step 6. IEP meeting is held and the IEP is written.  The IEP team gathers to talk about the child's needs and write the student's IEP. Parents and the student (when appropriate) are part of the team. If the child's placement is decided by a different group, the parents must be part of that group as well.Before the school system may provide special education and related services to the child for the first time, the parents must give consent. The child begins to receive services as soon as possible after the meeting. If the parents do not agree with the IEP and placement, they may discuss their concerns with other members of the IEP team and try to work out an agreement. If they still disagree, parents can ask for mediation, or the school may offer mediation. Parents may file a complaint with the state education agency and may request a due process hearing, at which time mediation must be available.

Step 7. Services are provided.  The school makes sure that the child's IEP is being carried out as it was written. Parents are given a copy of the IEP. Each of the child's teachers and service providers has access to the IEP and knows his or her specific responsibilities for carrying out the IEP. This includes the accommodations, modifications, and supports that must be provided to the child, in keeping with the IEP.

Step 8. Progress is measured and reported to parents.  The child's progress toward the annual goals is measured, as stated in the IEP. His or her parents are regularly informed of their child's progress and whether that progress is enough for the child to achieve the goals by the end of the year. These progress reports must be given to parents at least as often as parents are informed of their nondisabled children's progress.

Step 9. IEP is reviewed.  The child's IEP is reviewed by the IEP team at least once a year, or more often if the parents or school ask for a review. If necessary, the IEP is revised. Parents, as team members, must be invited to attend these meetings. Parents can make suggestions for changes, can agree or disagree with the IEP goals, and agree or disagree with the placement.If parents do not agree with the IEP and placement, they may discuss their concerns with other members of the IEP team and try to work out an agreement. There are several options, including additional testing, an independent evaluation, or asking for mediation (if available) or a due process hearing. They may also file a complaint with the state education agency.

Step 10. Child is reevaluated.  At least every three years the child must be reevaluated. This evaluation is often called a "triennial." Its purpose is to find out if the child continues to be a "child with a disability," as defined by IDEA, and what the child's educational needs are. However, the child must be reevaluated more often if conditions warrant or if the child's parent or teacher asks for a new evaluation.

A Closer Look at the IEP

Clearly, the IEP is a very important document for children with R-CIS and for those who are involved in educating them. Done correctly, the IEP should improve teaching, learning and results. The IEP of each child with R-CIS describes, among other things, the educational program that has been designed to meet that child's unique needs. This part of the guide looks closely at how the IEP is written and by whom, and what information it must, at a minimun contain the following:

Contents of the IEP

By law, the IEP must include certain information about the child with R-CIS and the educational program designed to meet his or her unique needs. In a nutshell, this information is:

  • Current performance. The IEP must state how the child with R-CIS is currently doing in school (known as present levels of educational performance). This information usually comes from the evaluation results such as classroom tests and assignments, individual tests given to decide eligibility for services or during reevaluation, and observations made by parents, teachers, related service providers, and other school staff. The statement about "current performance" includes how the child's disability affects his or her involvement and progress in the general curriculum.
  • Annual goals. These are goals that the child with R-CIS can reasonably accomplish in a year. The goals are broken down into short-term objectives or benchmarks. Goals may be academic, address social or behavioral needs, relate to physical needs, or address other educational needs. The goals must be measurable-meaning that it must be possible to measure whether the student has achieved the goals.
  • Special education and related services. The IEP must list the special education and related services to be provided to the child with R-CIS or on behalf of the child with R-CIS. This includes supplementary aids and services that the child with R-CIS needs. It also includes modifications (changes) to the program or supports for school personnel-such as training or professional development-that will be provided to assist the child with R-CIS.
  • Participation with nondisabled children. The IEP must explain the extent (if any) to which the child with R-CIS will not participate with nondisabled children in the regular class and other school activities.
  • Participation in state and district-wide tests. Most states and districts give achievement tests to children in certain grades or age groups. The IEP must state what modifications in the administration of these tests the child will need. If a test is not appropriate for the child, the IEP must state why the test is not appropriate and how the child will be tested instead.
    Dates and places. The IEP must state when services will begin, how often they will be provided, where they will be provided, and how long they will last.
  • Transition service needs. Beginning when the child with R-CIS is age 14 (or younger, if appropriate), the IEP must address (within the applicable parts of the IEP) the courses he or she needs to take to reach his or her post-school goals. A statement of transition services needs must also be included in each of the child's subsequent IEPs.

Needed transition services. Beginning when the child with R-CIS is age 16 (or younger, if appropriate), the IEP must state what transition services are needed to help the child with R-CIS prepare for leaving school.

Age of majority. Beginning at least one year before the child with R-CIS reaches the age of majority, the IEP must include a statement that the student with R-CIS has been told of any rights that will transfer to him or her at the age of majority. (This statement would be needed only in states that transfer rights at the age of majority.)

Measuring progress. The IEP must state how the progress of the student with R-CIS will be measured and how parents will be informed of that progress. More information will be given about these IEP parts later in this guide. A sample IEP form will be presented, along with the federal regulations describing the "Content of the IEP," to help you gain a fuller understanding of what type of information is important to capture about a child with R-CIS in an IEP. It is useful to understand that the IEP of each child with R-CIS is different. The document is prepared for that child only. It describes the individualized education program designed to meet the needs of that child with R-CIS.

Additional State and School-System Content

States and school systems have a great deal of flexibility about the information they require in an IEP. Some states and school systems have chosen to include in the IEP additional information to document their compliance with other state and federal requirements. (Federal law requires that school districts maintain documentation to demonstrate their compliance with federal requirements.) Generally speaking, extra elements in IEPs may be included to document that the state or school district has met certain aspects of federal or state law, such as:

  • holding the meeting to write, review and, if necessary, revise a child's IEP in a timely manner;
  • providing parents with a copy of the procedural safeguards they have under the law;
  • placing the child in the least restrictive environment; and
  • obtaining the parents' consent.

IEP Forms in Different Places

While the law tells us what information must be included in the IEP, it does not specify what the IEP should look like. No one form or approach or appearance is required or even suggested. Each state may decide what its IEPs will look like. In some states individual school systems design their own IEP forms.Thus, across the United States, many different IEP forms are used. What is important is that each form be as clear and as useful as possible, so that parents, educators, related service providers, administrators, and others can easily use the form to write and implement effective IEPs for their students with R-CIS.

Related Services  A child with R-CIS may require any of the following related services in order to benefit from special education. Related services, as listed under IDEA, include (but are not limited to):

  • Audiology services
  • Counseling services (including noninvasive treaments for R-CIS)
  • Early identification and assessment of disabilities in children with R-CIS (including the Little ARSE and the Big ARSE)
  • Medical services (including invasive treatments for R-CIS)
  • Occupational therapy
  • Orientation and mobility services
  • Parent counseling and training
  • Physical therapy
  • Psychological services (including noninvasive treatments for R-CIS)
  • Recreation (excluding the drawing of graphic representations of the syndrome)
  • Rehabilitation counseling services
  • School health services (including invasive treatments for R-CIS)
  • Social work services in schools
  • Speech-language pathology services
  • Transportation

If a child with R-CIS needs a particular related service in order to benefit from special education, the related service professional should be involved in developing the IEP

  


Copyright © 2003  National R-CIS Foundation of America.
All rights reserved.
Revised: September 14, 2003 .